The Misdiagnosed Diaries: Stories & Waiting Room Revelations

Five hard-won lessons from navigating a broken health system — and how they might help others get answers sooner.

A look at the everyday failures in healthcare that would never be acceptable in any other industry — and why patients deserve better communication, access, and accountability.

I spent decades being told my scans were normal, only to learn that “clean” doesn’t always mean healthy — sometimes it means no one’s looked in the right place yet.

Trust in healthcare should be earned, not assumed — spot red flags, seek multiple opinions, and build a care team that listens. Trust yourself first, then the right doctors.

Rest isn’t about doing nothing; it’s about doing what helps your nervous system settle.

A guide to navigating arrogant or dismissive doctors: stay prepared, ask smart questions, document everything, and save your energy for the clinicians who truly listen.

When it comes to medical bills, “financial informed consent” can save you hundreds. This piece breaks down your right to know costs before you agree — and how to challenge unfair charges with confidence.

Even on your good days, your chronic illness is still real. This blog reminds you not to gaslight yourself just because you're feeling better for the day.

Getting dressed with chronic illness isn’t just about clothes — it’s about comfort, creativity, and showing up in a body that keeps rewriting the rules.

A look at how pain, masking, and appearance shape the way doctors and others perceive chronic illness — and how “looking well” can be the biggest barrier to being believed.

When a simple email turned exclusion into inclusion, it revealed how powerful small acts of accessibility can be. This story is a reminder that real inclusion starts with thoughtfulness, not grand gestures.

Getting diagnosed doesn’t fix everything — but it gives you a starting point. This post explores how a diagnosis can unlock treatment, support, understanding and the right help.