Misdiagnosed & Misunderstood

Welcome to the place for patients who won’t be dismissed.

You’ve been told it’s “just anxiety,” “nothing to worry about,” or “all in your head.” But you know your body — and something isn’t right. This space is for the determined, the exhausted, the smart-but-sidelined patients (mostly women) who are done being brushed off and ready to take their health into their own hands. You're not imagining it. You're not alone. And you're definitely not too difficult — you’re just undiagnosed.

Let’s change that.

"But have you tried yoga?"

What Do I Know?

I’ve been misdiagnosed more times than I’ve lost bobby pins—turns out “IBS” was a connective tissue disorder, “Raynaud’s” was POTS, “anxiety” was ADHD, “MALS” was just a hyperactive gallbladder (which I lost), and “FND” was actually complex venous outflow disorder.

I knew it was getting dire when my GP had given up on me and ChatGPT and Google were more helpful than the medical advice I was receiving.

I don’t claim to know everything—but I do know what it feels like to be dismissed, unheard, and stuck in a body that’s constantly hurting. I know how overwhelming and lonely the medical maze can be. So if sharing what I’ve learned helps make your journey even 5% less confusing, frustrating, or gaslight-y—then that’s a win in my book.

Now What?

After all the misdiagnoses and medical mayhem, I’ve channelled the chaos into something useful—this blog. It’s split into three parts to help you laugh, learn, and feel less alone.

The Misdiagnosed Diaries: Stories & Waiting Room Revelations

Real stories from people who were told “it’s all in your head” — until it wasn’t.

A collection of raw, ridiculous, and all-too-familiar tales from the chronically dismissed. Read the receipts, raise your eyebrows, and maybe feel a little less alone.

Take me there

Get Unstuck: Guides & Gameplans

Resources for when you’re stuck in the loop of referrals, doubt, and medical mayhem.

Think practical templates, scripts, and roadmaps — minus the condescension. Whether you're trying to push back without being labelled “difficult,” or just figuring out your next move, these tools were made to help you outsmart the system.

The Recharge Kit: Emotional & Wellbeing Support Ideas

Because you can’t self-advocate if you’re running on crumbs and cortisol.

Gentle strategies, tiny joys, and coping hacks to help you keep your nervous system (and sense of humour) intact. Plus: tips for the people who love you but don’t know what to say, do, or Google.

Like What You're Reading?

If you're enjoying the blog and want to support it, feel free to check out my little shop. Every purchase helps keep this blog running.