Letters From an Invisible Illness

A collection of letters for the people living in bodies nobody fully understands.

Written for EDS Awareness Month

Dear people who think we make chronic illness our whole personality

A letter to the people who think chronic illness becomes our identity, and why most of us spend every day trying to escape it.

To Those Living With Dynamic & Degenerative Conditions

For the people constantly adapting to bodies the world cannot fully see struggling 🤍

To the people who say, “Don’t ask online. Go see a doctor.”

Sometimes being “too online” is what happens when you’ve spent years being unheard offline.

Dear People Who Think We Share Too Much

A letter about why chronic illness representation online is not “oversharing,” but often the very thing that helps people feel understood, find answers, and survive terrifying medical journeys.

A Love Letter To The Girls Still Fighting To Be Believed

A love letter to the women still fighting to be believed, and the exhausting reality of navigating life, diagnosis, and medical gaslighting with Hypermobile Ehlers-Danlos syndrome and its comorbidities.

To Doctors Who Helped Create the Wellness Industry

A letter to the medical system about why so many chronically ill patients stop feeling safe in medicine, and what happens when dismissal creates a gap the wellness industry rushes in to fill.

To the Doctors Who Said I Was Fine

Sometimes the most damaging part of complex illness isn’t the condition itself, but how long you spend being told you’re fine while your body quietly falls apart.

What You See

A deeply personal piece about invisible illness, Ehlers-Danlos Syndrome, and the hidden reality behind looking “fine.” 8/05.